Rare Disease Day Cocktail Reception & Documentary Screening
Please join RDLA for our 4th Annual Rare Disease Cocktail Reception & Screening of the HBO Documentary Film Life According to Sam to kick-off Rare Disease Day Week in Washington, DC.
Tuesday, February 25, 2014
Carnegie Institution of Science, 1530 P Street Northwest, Washington DC
5:30pm Cocktail Reception * 7:00 pm Movie Screening
8:30 pm Panel Discussion
The event is free & open to the public. We encourage you to wear Jeans to support the Global Genes Project.
By Sean Fine and Andrea Nix Fine, Academy Award and Emmy Award-winning filmmakers who have been making films together since they were married in 2003.
What is aging in Sam Berns, is aging in all of us. But in Sam’s body, the process is rapidly accelerated. When Sam was diagnosed with progeria at age two, his parents, Dr. Leslie Gordon and Dr. Scott Berns refused to accept that they would lose their son by age 13, the average age of death of a child with this disease. Eleven years later, Sam is 13 and his parents’ incredible race to save their son, has led to testing the first experimental drug that might prolong the lives of Sam and 28 other children from around the world that share this disease. Their discoveries may one day shed light on unlocking the aging process in us all. Life According to Sam is an inspiring film about the power of family and how we make the most of our lives in the time we are given.
Followed by a Panel Discussion with the Director of the National Institutes of Health, Dr. Francis Collins
Thank you to our Sponsor!