A Program of the EveryLife Foundation for Rare Diseases
In-District Lobby Days
RARE on the Road
Rare Disease Week on Capitol Hill
2017 Rare Disease Week – Legislative Conference
2017 Rare Disease Week – Rare Disease Congressional Caucus Briefing
2016 RareVoice Award Recipients
Please note that we do not accept self-nominations, nominations of Members of Congress or nominations of industry employees unless they are rare disease patients or caregivers. Nominations are open from May 15 until July 31, 2017.
2017 RareVoice Award Nomination
Federal Advocacy: Agency Staff
Federal Advocacy: Congressional Staff
Federal Advocacy: Patient/Organization
State Advocacy: State Legislator
State Advocacy: Patient/Organization
Federal or State Advocacy by a Teenager
Nominee Address (if available)
State / Province / Region
ZIP / Postal Code
Nominee Email Address
Nominators will remain anonymous.
What specific legislation or policies were impacted by the nominee? Please be specific.
Please explain how the policy or legislation advocated by the nominee was important to the rare disease community.
What is your relationship to the nominee?
Are there websites or news articles with relevant information on the nominee's accomplishments? If so, please list them below.
Please include links to news articles, blogposts, Youtube videos or other materials that will help the Nominations Committee get a deeper understanding of the nominee’s accomplishments.
Your Organization / Disease Affiliation
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