A Program of the EveryLife Foundation for Rare Diseases
RARE on the Road
In-District Lobby Days
Regional Legislative Conferences
Rare Disease Week on Capitol Hill
2016 Rare Disease Week – Legislative Conference
2016 Rare Disease Week – Lobby Day Breakfast
2016 Rare Disease Week – Rare Disease Congressional Caucus Briefing
2016 RareVoice Award Recipients
Thank you to everyone who submitted a nominee for the 2016 RareVoice Awards. The final list of nominees will be announced in early September.
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