Rare Disease Legislative Advocates is pleased to invite you to the Sixth Annual RareVoice Awards

Wednesday, November 15, 2017

6:00 p.m. Cocktail Receptionartboard-1 6:30 p.m. Congressional Toastartboard-1 8:00 p.m. Awards Ceremony
artboard-1 9:00 p.m. After Party Celebration

Arena Stage artboard-1 1101 6th Street, SW artboard-1 Washington, DC

Complimentary Valet artboard-1 Business or Formal Attire

This is a free and widely attended event

The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff gather to honor these outstanding advocates for the rare disease community. This is a widely attended public event. 2017 will mark the 6th year of the RareVoice Awards, which will be held November 15, 2017 at the Arena Stage in Washington, DC.

Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the Rare Voice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD). The event will be held November 15, 2017 at the Arena Stage in Washington, DC. There is no cost to attend the event in order to permit Members of Congress as well as Congressional and governmental staff to attend. Past award recipients include:

2012 2013 2014 2015 2016
Hon. Michael McCall Hon. Michael Burgess MD Hon. Doris Matsui Hon. Gus Bilirakis Hon. Orrin Hatch
Hon. Cliff Stearns Hon. Ileana Ros-Lehtinen Willam A. Gahl, MD, PhD Hon. GK Butterfield Hon. Joseph Crowley
Hon. Edolphus Towns Hon. David McKinley, PE Allen E. Guttmacher, MD Hon. Diana DeGette Hon. Lamar Alexander
Mark Dant Mike Astrue Cheryl Jaeger Hon. Fred Upton John Gallin, MD
Nancy Goodman John F. Crowley,JD,MBA Jeff Leider Stephen Groft, Pharm.D Grace Stuntz
Abbey Meyers Art Estopinan Gabriella Miller Saul Hernandez David Fajgenbaum, MD
Tom Power Patricia Furlong Jonny Lee Miller Clay Alspach Sabrina Low-DuMond
Emily Shetty Jill Wood National Down Syndrome Society Ronald Bartek Gina Szajnuk
Andy Taylor Janet Woodcock, MD Lisa & Max Schill Richard Pan, MD
Roy Zeighami Patricia Weltin


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Presented By

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Hosted By

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Proceeds Fund

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Thank you to our 2017 sponsors:

For more information or sponsorship inquiries, email Carol Kennedy at ckennedy@everylifefoundation.org

#RAREVOICE

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