Do you know anyone who has gone above and beyond to become a rare disease policy leader and political advocate in their state or in our nation? Rare Disease Legislative Advocates (RDLA) has opened nominations for the Rare Voice Awards to be given on November 15th in Washington, DC. This year marks the sixth annual RareVoice Awards so please nominate your favorite advocate and plan to attend the celebration. Nomination categories include:
Do you know a staffer who been instrumental in helping create or implement legislation that benefits the rare disease community?
Government Agency Staff
Do you know a government agency staffer who has gone out of their way to help rare disease patients have a voice?
Patient Advocate – Federal Level Advocacy
Do you know an advocate or organization who has worked with the House of Representatives and/or the Senate to spearhead legislation at the federal level?
Patient Advocate – State Level Advocacy
Do you know an advocate or organization who has crusaded on the state level to support and advance rare disease legislation?
RareVoice Award nominations are open to the public. We encourage the community to nominate individuals and organizations who advocate for legislation and policy that benefits the rare disease community. Winners are selected by an independent committee composed of representatives from the rare disease community and previous RareVoice Award recipients.
To nominate a rare disease champion, please click HERE. Nominations close on July 31st.
Winners will be announced LIVE at the 6th annual RareVoice awards ceremony on November 15 in Washington, DC at Arena Stage in the the Mead Center for American Theater. These champions will receive the coveted Abbey award.
The award is named after Abbey Meyers, the founder of the National Organization for Rare Disorders (NORD), and represents the “rare voice” speaking on behalf of the patients, especially children, who might not otherwise be heard. The Abbey statue was commissioned for the RareVoice Awards from the renowned sculptor Nobe. Each statue is handmade in bronze.