A Program of the EveryLife Foundation for Rare Diseases
2016 Rare Disease Week – Lobby Day Breakfast
The 2016 Lobby Day Breakfast gathered advocates prior to their meetings on Capitol Hill to hear from thought-leaders on rare disease issues. RDLA was honored to host keynote addresses from current FDA Commissioner Dr. Robert Califf, Energy & Commerce Chair Representative Fred Upton (R-MI), and the sponsor of the OPEN ACT, Representative Gus Bilirakis (R-FL). A video of each keynote address is available below.