(Washington, D.C.) – Today, Reps. Joe Crowley (NY-14) and Leonard Lance (NJ-7), co-chairs of the Congressional Rare Disease Caucus, issued the following statement in recognition of Rare Disease Day:
“Today, we join the millions of patients, their families, and the global health community in observing Rare Disease Day.
“For the 30 million Americans suffering from a rare disease, half of whom are children, medical advancements can’t come soon enough. Most rare diseases have no current treatment available, and many are not even studied by researchers.
“The Rare Disease Caucus is a way to not just build awareness of rare and neglected diseases, but also to focus on solutions that will help the millions of Americans struggling with a rare disease.
“There is much work ahead of us, but we believe that with the support of the entire rare disease community, we can help provide a spark of hope for the millions of patients and their families across America.”
See the entire release at: http://crowley.house.gov/press-release/rare-disease-caucus-chairs-recognize-rare-disease-day