Participate Remotely in In-District Lobby Days This Summer

Please join the more than 230 advocates who are meeting with their federal legislators during August recess by contacting your Members of Congress. It is easy to participate remotely, and you can do it on your own timeframe!

First, check out the action alerts on our website. It only takes a few minutes to enter your address and send a message to your legislators. Current alerts include:

  • The Alliance for a Stronger FDA encourages advocates to request robust appropriations for the Food and Drug Administration (FDA) to ensure the Agency has the resources it needs to recruit and retain qualified staff and efficiently oversee the review of medical products. Click here to take action.
  • The EveryLife Foundation for Rare Diseases asks advocates to urge their legislators to co-sponsor the OPEN ACT (Orphan Product Extensions Now, Accelerating Cures and Treatments; HR 1223/S 1509) which has the potential to double the number of rare disease treatments approved by FDA. Click here to take action.
  • RDLA is working to grow the Rare Disease Congressional Caucus, a forum for Members of Congress to voice constituent concerns, collaborate on ideas, facilitate conversations between the medical and patient community and build support for legislation that will improve the lives of people with rare diseases. Click here to invite your legislators to join the bipartisan Caucus.

Then, if there is not an action alert for your legislative priority or if you want to do more than send an email, call the United States Capitol switchboard at (202) 224-3121 to be connected to the office of your Representative or Senators. Ask to speak with the Legislative Assistant who handles healthcare or a leave message with your “ask” as well as your contact information. The resources on the In-District Lobby Day webpage can help you prepare for your calls.

Participating in In-District Lobby Days in-person or remotely will help you build relationships with key staff members in your legislators’ offices, and ensure that they are aware of the impact of rare disease on local communities.