Rare Disease Legislative Advocates’ North-East Conference

Rare disease patient advocates and other stakeholders from the rare disease community came together on Monday, July 20th, 2015 in Newark, NJ for our inaugural North-East Legislative Conference. The goal of our new regional legislative conferences was to update advocates about important legislation advancing through Congress and to prepare them to meet with their Representatives during August Recess.

This year Congress is working on legislation that will have a huge impact on drug development and approval, and as a community we must join together to ensure the legislation benefits rare disease patients and is passed in both the House and the Senate.

Click here to see NorthEast Legislative Conference Agenda

This event was a great success view photos here:

Co-Hosted by: 

Thank you to our sponsors: