On January 24th at 3pm EST, the National Organization for Rare Disorders (NORD) will host a webinar on the 2016 State Report Card. Tim Boyd, Associate Director of State Policy at NORD, will discuss the report card and discuss what this means for 2017 advocacy initiatives across the country. There will be an opportunity to ask questions. You can register for the free webinar here.
The second annual edition of the NORD State Report Card rates states on the strength of policies that help people with rare diseases, including coverage of medical foods, newborn screening, and prescription drug cost-sharing limits. You can download the report here.