The National Leiomyosarcoma Foundation is Asking Patient Advocates to Call Their Members of Congress in Support of Resolution Establishing National Sarcoma Awareness Month

The National Leiomyosarcoma Foundation is asking patient advocates to call their Members of Congress in support of a resolution to create a National Sarcoma Awareness Month and a National Leiomyosarcoma Awareness Day in 2018.  A National Sarcoma Awareness Month for JULY would allow awareness and support on a national scale.

Leiomyosarcoma Awareness Day-July 15 was granted by Congress in 2016. This year, the focus and hope is for a National Sarcoma Awareness Month of July and a National and Leiomyosarcoma Awareness Day to follow for July 15, 2018. Click here to read a letter from the National Leiomyosarcoma Foundation along with the resolution. 

1. Sarcoma is a designated rare cancer because it represents 1% of all cancers.
2. There are between 50 – 70 sarcoma subtypes. Some researchers have even indicated possibly
Up to 100 lately.
3. Sarcomas know no age boundaries – children, young adults, older adults are diagnosed
4. It is expected that the increase in sarcoma diagnoses will continue to rise annually.
5. Sarcoma is difficult to treat and the life expectancy after diagnosis is short.
6. For example, for Leiomyosarcoma, there is a 64% survival rate of up to 5 years.
For Leiomyosarcoma, there is no immunotherapy that is working yet.
7. Since sarcoma is a rare cancer, it is important for the patient population to be
heard, and the disease better understood throughout communities.
8. No longer having a ” rare voice” in the cancer landscape can help spotlight sarcoma and its
Many subtypes – for national awareness, support, and elevated funding to accelerate treatment
options that can advance survival rates.
9. The results of this are evident in the common cancers – breast cancer especially.
10. Rare Cancer would benefit from the same level of involvement in awareness, support, funding.