January 24: Monthly Legislative Meeting
RDLA’s January Legislative Webinar
Wednesday, January 14th, 2018
12:00 – 1:00 pm ET
- Expanded Carrier Screening, Jennifer Smith MD, Fellow of the American College of Obstetricians and Gynecologists, Consultants in Women’s Healthcare
- The Senate Health, Education, Labor and Pensions (HELP) Committee’s Plans for FDA-Related Issues, Remy Brim, Senior FDA Policy Advisor, HELP Committee Ranking Member Patty Murray (D-WA)
- The Lymphedema Treatment Act, Patricia Egan, Member, Board of Directors, Lymphedema Advocacy Group
- The OPEN ACT, Julia Jenkins, Executive Director, EveryLife Foundation for Rare Diseases
- Rare Disease Week on Capitol Hill, Sabah Bhatnagar, Program Director, Rare Disease Legislative Advocates, EveryLife Foundation for Rare Diseases
*Webinar includes OPEN ACT and Rare Disease Week on Capitol Hill recording.