RDLA has a plethora of tools you can use to amplify your voice and make sure it is heard in Government.

– Follow and track the bills affecting the Rare Disease Community, including the bills rare disease advocates lobbied for during Rare Disease Week 2014: http://www.congressweb.com/kaki/bills

– Find, write, and call your elected officials to tell them what you want their priorities to be: http://www.congressweb.com/kaki/legislators

– Use this link to find media contacts in your area and send an op ed to your local paper: http://www.congressweb.com/kaki/media

– Find information on the elections in your area: http://www.congressweb.com/kaki/voterinformation

2012 RARE Patient Advocacy Summit – Session #1 – Political Advocacy – You Have The Power!

A discussion about the power you have in political advocacy at the federal, state and local levels. One voice – yours! – makes a world of difference …

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Back to Basics: HIV/AIDS Advocacy as a Model for Catalyzing Change

Thirty years after the emergence of the HIV/AIDS epidemic, a report co-authored by FasterCures and HCM Strategists examines how HIV/AIDS advocacy redefined patient engagement in the medical research process, and changed the drug development paradigm.

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How a Bill Becomes a Law

There are many resources that show how a bill becomes a law, however the best way to learn, is by participating in the process.  Join us for our Legislative Conference & Lobby Day!

To read out the legislative process check out VoteSmart.org


Opportunity to Learn From AIDS Activists – Documentary Screenings

ACT UP and their colleagues fought for nine years before winning life-saving medications. They organized a mass movement, they took to the streets, they made art, they made noise, they made a difference. Their tools included clear demands, arresting graphics, media savvy, and an ability to learn from their mistakes and refine their strategies. And a sense of humor, when appropriate, in combination with their urgent and ethical message.

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