RDLA has a plethora of tools you can use to amplify your voice and make sure it is heard in Government.
– Follow and track the bills affecting the Rare Disease Community, including the bills rare disease advocates lobbied for during Rare Disease Week 2014: http://www.congressweb.com/kaki/bills
– Find, write, and call your elected officials to tell them what you want their priorities to be: http://www.congressweb.com/kaki/legislators
– Use this link to find media contacts in your area and send an op ed to your local paper: http://www.congressweb.com/kaki/media
– Find information on the elections in your area: http://www.congressweb.com/kaki/voterinformation
It’s easy, just type in your zip code & it will pull up all your local newspapers!
ACT UP and their colleagues fought for nine years before winning life-saving medications. They organized a mass movement, they took to the streets, they made art, they made noise, they made a difference. Their tools included clear demands, arresting graphics, media savvy, and an ability to learn from their mistakes and refine their strategies. And a sense of humor, when appropriate, in combination with their urgent and ethical message.