Entries by Sabah Bhatnagar

The Alliance for a Stronger FDA Encourages Advocates to Ask Their Legislators for Robust FDA Appropriations

The Alliance for a Stronger FDA is encouraging patient advocates to ask their legislators to support robust funding for the Food and Drug Administration (FDA). The FDA plays a critical role for rare disease patients because: The Agency ensures access to safe and effective medical products and is key to preserving public health. FDA-regulated industries […]

Rare New England Asks Massachusetts Residents to Contact Their State Legislators in Support of MA Rare Disease Advisory Council

Rare New England (RNE) asks Massachusetts residents to call or email state legislators to ask for their support for HB3714, “An Act to Create a Rare Disease Advisory Council.” RNE has been collaborating with MA State Representative Paul Heroux, who has championed HB3714, since 2015. To learn more about the bill, click here.